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From: Stacie
I was told about a year ago that I could have this VV. And was told I would need a pace maker. I was emotional of course, i am only 29. I never had the pace maker put in, I was told after someone I know had researched the syndrome that this was all in my head, and that i was making this all up. But I have a 6year old son, and I was in Wal-Mart about a month ago, and another "attack" came, I was in the cooler section, I was freezing cold to the touch, and shivering, yet my body started to get super sweaty and sweat pouring down from all of my body, then everything starts to get really dark, my hearing gets real dense and my ears are ringing lso loud that I can not hear anything. I had to hold onto the grocery cart, because i felt myself wanting to fall to the floor, my legs were so weak. My son was saying in a echo sound to me "mommy, Mommy, your sweating, Mommy" I am sorry, I get upset when i talk about it, because I did not know what to do, and I could not take care of my sone for that few minutes. This has happened while I was driving twice, once in the burgerking drive thru, and I do not think it is all in my mind, but I have a new doctor, and he says this is what I have, I also have Aweful migrianes for days at a time before this "attack" comes on, and my head has been swelling, witch no one believes, so I have begun to take pictures of myself to prove the swelling is there. I am scared. Is this a real desease or not, please help. Stacie