[ Home | Contents | Search | Post | Reply | Next | Previous | Up ]
From: DEANNE
HI EDYIE ,SO FAR YOU SEEM TO HAVE AT LEAST ONE OF THE SYMPTOMS THAT I GET WHEN ONE OF THESE THINGS COME ON. I TOO EXPERIENCE THE HEAT YOU DESCRIBED. THE ONLY DIFFERENCE IS I DON'T BREAK INTO A SWEAT. MY BODY AND MY FACE FEEL LIKE THEY ARE BURNING HOT. I CAN'T EXPRESS ENOUOGH TJIS EXTREME FEELING O FHEAT. I HAVE HAD 2 OF THESE EPISODES AND THEY ALWAYS HAVE ACCURRED OR BEEN ASSOCIATED WITH SEVERE STOMACH CRAMPS. BOTH TIMES I HAVE BEEN ON THE TOILET. THE PAIN IS ALMOST UNBEARABLE, IN FACT HAD I NOT HAD COMPANY THE FIRST TIME IT HAPPENED I WOULD HAVE HAD MY HUSBAD CALL 911. MY HEART WAS POUNDING SO HARD MY BODY WOULD ACTUALLY MOVE WITH EACH BEAT. THERE WAS NO CHEST PAIN, BUT I COULD TELL I WAS ABOUT TO PASS OUT BECAUSE I REMEMBER MY HEARING WAS FADING. THE EPISODE LASTED AT LEAST 30 MINUTES OR MORE. SEVERAL WEEKS AFTER IT HAPPENED MY NIECE WAS RUSHED BY AMBULANCE TO THE HOSPITAL FROM WORK. SHE FAINTED AND SHE HAD CHEST PAIN AND HER BODY WAS HOT ALSO. WHEN THEY TOLD ME THEY "THOUGHT" SHE HAD A VAGAL REACTION I ASKED THE NURSE WHAT IT WAS AND SHE PRETTY MUCH SAID IT WAS A FANCY WORD FOR PASSING OUT. ANYWAY MY NIECES SYMPTOMS MADE ME WONDER IF WHAT I HAD WAS A VAGAL REACTION ALSO. WHEN I FOUND THIS WEB SITE IT SOUNDED ALOT LIKE WHAT I HAD. I HAD ANOTHER EPISODE LAST WEEK AND WHILE I WAS SITTING ON THE TOILET FEELING LIKE I WAS BEING BBQ'D AGAIN I REMEMBER THE NURSE SAYING SOMETHING ABOUT HOW PEOPLE BEAR DOWN TO GO TO THE BATHROOM OR HOW WHEN SOME PEOPLE GRUNT WHEN GETTING UP FROM A SITTING POSITION, OR HOLD THEIR BREATH WHILE PICKING UP A HEAVY OBJECT SO I TRIED NOT TO BEAR DOWN BUT THE CRAMPS WERE KILLERS! SO I CONCENTRATED ON MY BREATHING AND KEPT TELLING MYSELF TO CALM DOWN . ANOTHER THING THAT HAPPENED WITH THE SECOND ONE WAS I COULD FEEL MY PULSE POUNDING IN MY GUMS. WEIRD. BUT IT FINALLY WENT AWAY AND I HAVEN'T TOLD MY DOCTOR AS OF YET BUT I DO FEEL A TAD BIT BETTER JUST KNOWING OTHER PEOPLE HAVE EXPERIENCED AT LEAST SOMETHING SIMILAR. MY SISTER IS AN R.N. AND WHEN I TOLD HER WHAT HAD HAPPENED TO ME SHE BROUGHT MY ATTENTION TO THE FACT THAT WE FOUND OUR DAD SITTING ON THE TOILET WHEN HE DIED. SO, TO SAY THE LEAST I AM TERRIFIED OF HAVING ANOTHER ONE . FROM WHAT I HAVE BEEN READING THOUGH THERE DOESN'T SEEM TO BE A KNOWN CURE OR MEDICATION FOR THIS . I DO HOPE PEOPLE WILL CONTINUE TELLING THEIR STORIES IN HOPES THE MEDICAL PROFESSION MAY TAKE A CLOSE LOOK AT THIS STRANGE PHENOMENA. THANKS FOR SHARING AND GOOD LUCK TO ALL OF US! DEANNE